Interview and Research
Updates-
Interview: I have begun interviewing my contacts concerning my Major Assessment project this past week. So far I have been speaking with my daughter's friend about her relationship with her older sibling who has Autism. The interview is continuing. She has spoken candidly about Sam's education, growing up with Sam and her role and future responsibilities as Sam's sister.
Kelly shared how educators (mid '90s) in the public schools had told her mother that there was nothing (educationally) that they could do for her. Sam's mother pulled her out of school and began working with her at home and continued to receive related services for Sam.
I also learned about how her parents, although divorced, continue to maintain consistency for Sam and (when she was younger) Kelly by maintaining to different households. Each parent alternates weeks where they live in the original residence with Sam and then return to the current house after their visitation.Sam's residence has been slated to be turned into a group home in both parents wills in order to provide stability for Sam.
Kelly has also briefly mentioned her role in Sam's life, her responsibilities and what it was like growing up. For example, although, Kelly has traveled overseas, she has not been able to do this on her own. She has always traveled with a friend or with family because "what would happen to Sam if something happened to me?"
My interview contact with an education professional that works in an special education early childhood facility is slated for early this week. I would like to incorporate some of Kelly's responses to the discussion to see what Donna's perspective is to the responses.
Research:
I have been researching the roles, responsibilities and relationships between children with disabilities and their siblings. Much of the research focuses on the adult relationships and reflection and parent discussion on siblings rather than the young sibling perspective. The findings have also varied. Some studies have noted that siblings experience stress and emotional issues (behavior), competition for family attention within the family growing up and as they assume the financial and guardianship responsibilities of their sibling. Other studies have noted the positive benefit aspects such as learning compassion, empathy, understanding and the interactions with their sibling.
Many of the studies have also noted the importance of having the siblings involved in the educational process and related services due to the positive impact their involvement brings to their siblings.
I have also discovered the Sibling Network, an organization that provides support to siblings of children and adults with disabilities. Some of the researchers of the studies I have read are listed on their board are siblings of individuals with developmental disabilities.
My research on this topic continues this week on the focus of resiliency and first person reflections.
Interview: I have begun interviewing my contacts concerning my Major Assessment project this past week. So far I have been speaking with my daughter's friend about her relationship with her older sibling who has Autism. The interview is continuing. She has spoken candidly about Sam's education, growing up with Sam and her role and future responsibilities as Sam's sister.
Kelly shared how educators (mid '90s) in the public schools had told her mother that there was nothing (educationally) that they could do for her. Sam's mother pulled her out of school and began working with her at home and continued to receive related services for Sam.
I also learned about how her parents, although divorced, continue to maintain consistency for Sam and (when she was younger) Kelly by maintaining to different households. Each parent alternates weeks where they live in the original residence with Sam and then return to the current house after their visitation.Sam's residence has been slated to be turned into a group home in both parents wills in order to provide stability for Sam.
Kelly has also briefly mentioned her role in Sam's life, her responsibilities and what it was like growing up. For example, although, Kelly has traveled overseas, she has not been able to do this on her own. She has always traveled with a friend or with family because "what would happen to Sam if something happened to me?"
My interview contact with an education professional that works in an special education early childhood facility is slated for early this week. I would like to incorporate some of Kelly's responses to the discussion to see what Donna's perspective is to the responses.
Research:
I have been researching the roles, responsibilities and relationships between children with disabilities and their siblings. Much of the research focuses on the adult relationships and reflection and parent discussion on siblings rather than the young sibling perspective. The findings have also varied. Some studies have noted that siblings experience stress and emotional issues (behavior), competition for family attention within the family growing up and as they assume the financial and guardianship responsibilities of their sibling. Other studies have noted the positive benefit aspects such as learning compassion, empathy, understanding and the interactions with their sibling.
Many of the studies have also noted the importance of having the siblings involved in the educational process and related services due to the positive impact their involvement brings to their siblings.
I have also discovered the Sibling Network, an organization that provides support to siblings of children and adults with disabilities. Some of the researchers of the studies I have read are listed on their board are siblings of individuals with developmental disabilities.
My research on this topic continues this week on the focus of resiliency and first person reflections.